Beware of Pain Clinics


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About a year ago I went to the Emergency Room of a VA Hospital in Florida where I live. I was having severe pain in my sciatica. Despite the fact that I was taking Morphine or MS Contin and Oxycodone I was still in pain. The doctor did an MRI on me and they basically said there was nothing that could be done. They suggested I go to the Pain Clinic to ask about hydrotherapy, acupuncture, and other means of therapy. This sounded good so I said I would talk to my doctor. They also said I should be on some sort of muscle relaxer. I then went to my doctor and told her everything and she asked why I need a muscle relaxer (a non-narcotic) and made it sound like I was a drug addict. She agreed to send me to the Pain Clinic. What I didn’t know was that she had suggested I be taken off all narcotics to get the muscle relaxer.
When I first went into the Pain Clinic I was greeted by a doctor with broken english and a very young doctor who was supposed to be a pharmacist. I was confused by this because I thought I was there to talk about therapy, not my medicine.
Right away the focus was all on my pain medication. He said they were going to ween me off all narcotics because several veterans have overdosed. I said that I take them the way I am supposed to and that I have a family to live for. He then said that it was because of my sleep apnea. He maintained that I could fall asleep and not wake up. I said that I thought that was what my CPAP machine was for.
pillsNext he told me that I should stop taking Prednisone because that’s most likely the root of all my problems. This was the funniest excuse to me. I was prescribed Prednisone due to a condition called PMR that causes severe inflammations and pain in my left shoulder. I couldn’t believe what I was hearing. I naturally thought this guy was a quack so I did some research on him. He is not even a pain specialist, but an internal medicine doctor.
When I stated my objections over several more visits this doctor got real defensive about his service. He is an officer in the National Guard and has been to Iraq twice. I find that very commendable, but irrelevant. I told him it didn’t matter, but he continued to sing his praises and try to impress me with his war record. I could care less. He tried to say it was nothing personal, but it’s very personal. He has ruined my life by taking away the one thing that helps me hold on and get through the day. I’d say that it’s personal when it affects your sleep, your relationships, and your attitude.
painclinic3I then saw this doctor’s supervisor and he was a big jerk. He examined me and was very nice at first and then proceeded to call me fat, lazy, and uneducated. I was really insulted and wanted to smack him. I almost did. I had to get up and leave. I tried to go to a patient advocated, but anyone who has tried this route knows that they don’t get involved in this kind of thing and always take the side of the doctor. I also tried going to my Senator and that was no help. He wrote to the Administrator who then sided with the doc.
So, basically now I have been without pain meds for 8 months. In some ways I do like the fact that my head is more clear, but there are moments where I want to just scream and pull my hair out. Nights are the worst for me. I smoke cigarettes and wonder why I can’t be normal like everyone else. My wife is sound asleep, there’s absolutely nothing to do and nothing seems to help. I really have tried everything and there’s nothing that works. As time goes on unfortunately you learn to deal with it because you have to, but I really don’t think I should. I did my time and I didn’t ask for this. I think it should be up to the VA to fix this problem. I warn all of you to stay away from these Pain Clinics unless you have Cancer they will not help you. I am now red flagged and can’t get anything without an override. I am miserable most of the time and do things like write here to keep my mind off of the pain. Also, if you live in Florida I would especially keep an eye on your pain meds because they are really cracking down here on the label of the “drug capital of the world.” or the pill-mill state. Now it’s the “no pills at all” state. My wife is disabled also and she can’t get anything for pain either from a regular doctor. They tell her “tough luck.”

Alternative Medicine & Therapy


I am not a doctor, nor do I pretend to give medical advice so anything written below should be considered by you and your medical prokratom leavesvider. I am only stating what has or has not worked for me. I am listing many different options for anyone looking to try something new. I also have included several links for more information on the links page. Here you can find many useful links to websites and books and more.

kratom powderKratom: I have tried Kratom recently and found that the powder in tea or a hot drink like coffee works well to relax my muscles and my back. I use about a teaspoon and a half in my cup. There are different blends and strains of Kratom for different ailments such as anxiety, headaches, energy, and more. Do some research. For now this is legal and I buy mine at a smoke shop, but it can be bought online as well. I have not had any harmful side effe

cts from this, but check with your doctor if you have any concerns.

Marijuana: I have used marijuana if I can afford it. I’m not alone as many Americans are finally marijuanarealizing the benefits of marijuana medically. For years many Cancer patients have used to get through chemotherapy and to relax aching muscles and more. It can also relax you and aid in sleeping more regularly. I am not encouraging anyone to break the law at all. If you are lucky enough to live in a state where it is legal you really have a lot of benefits available in edible cannabis and better strains of this plant which holds so many possibilities of treatment. Personally, I don’t drink alcohol as it makes me very mean and for some reason I used to like to drive while drunk often so marijuana to me is much better than drinking as all I want to do is relax and watch a good movie instead of raising hell and getting into legal trouble.

Charlotte’s Web: This is a cannabinoid oil that can be smoked to relax muscles and has been effective for the use in children or those who benefit from the use of THC pain relieving qualities, but doesn’t give the euphoric feeling. It is legal in all states now.

pain3Chiropractor: I have used one of these and it didn’t help much for me, however I have friends who swear by their chiropractor. They work on your muscles and spine mostly to prevent further damage. They also help with joint pain. If you have a chance you might want to just meet with someone at the office of a chiropractor and see if you can discuss how this could benefit you.

Integrative Medicine: This type of treatment combines mainstream medicine with alternative remedies. It seems that some doctors feel compelled to find out about certain treatments that are just simply ridiculous and then those that may have acutal benefits toward the patient. This type of medicine also emphasizes a close relationship between the medical professional and his or her patient.

I have benefited from some other things that may or not be labeled. I know that some of you may not believe in God or practice religion for whatever reason, but I personally have found a lot of help from my spiritualism. I don’t think I’m extremely religious and I don’t go to church because I don’t care for crowds and when I have been involved with a church they seem to be hypocrites to me, but of course not everyone is like that. I just prefer to worship in my own way. I also enjoy just trying to improve myself in any way possible whether it be learning to speak French, reading a self-help book, or looking at a bible. I also have enjoyed some books by authors listed below that are about spiritualism or self-help. I also enjoy trying to meditate sometimes. I’m not really a meditation type of guy. Being a big, clumsy oaf looks funny when your wife walks in on you repeating “OHHHMMM.” I was really embarrassed, but my wife knows I’m certifiable most of the time anyway! But if you focus your breathing and your mind to a silent place it can do wonders. I have managed to block out hours of pain with this type of behavior and with the help of music. I usually put on some Neil Young or similar softer rock that I can sleep to. The Eagles are my favorite to chill. All the good times associated with my favorite music is the key for me. I dream of when I was younger and healthier and I also imagine that some day I  will be healthy again.

dogs3Hopefully we can all agree that there is a force in this universe that seems to somehow regulate karma and things like that. So if you can get behind a “higher power” you might want to try to work on being open to new things. Just try a book on self-help even if you swore off them forever years ago. Maybe Tony Robbins pissed you off as much as he did me. I just think there are some good books that everyone should read. I will list the ones I can think of below with some links. There are also fiction that deals with spiritual type plots. One of my favorite is:

I also recommend trying to lose all anger you may carry around. Think about your frustration and how it is ruining your life. You may also want to try to let go of all guilt, resentment, and any other negative feelings that will sure bring you down and affect your health. It especially doesn’t pay to just lose your temper. Believe me I have had to learn the hard way. Next time you feel yourself wanting to explode just take a walk, listen to music or anything to get your head straight. One thing that always freaks out a bully or somebody who is acting strangely is to be super kind back to them. They are caught off guard and may even start treating you with more respect. Smile as much as you can and you may find your body responds with a happy feeling. I know that this stuff may sound a little strange to some of you, but if you spend as much time as I do trying to deal with chronic pain you will try anything! Good luck, and I hope that you find a good place to start dealing with getting your life back on track as much as that’s possible.

Visit the links page for links to great books on all kinds of alternative medicine, herbal remedies, spiritual and self-help type books.

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A Day in the Life


pain6It’s not easy to bare your soul and let complete strangers into your life. I realize that this blog isn’t terribly popular, but this is on here as long as I don’t delete it indefinitely and anyone can view it. That being said, I want to let you into my life and what I am going through. I also want to tell you that I know that some of you may read this and think I am whining, looking for attention, or maybe trying to get sympathy. That is definitely not the case. I cannot emphasize this enough. This blog has never been about me. I’d be lying if I said I don’t want help, but I am not a selfish person and I would like to think that my creative gifts are being used to help others, not just myself. If my blog can in any way help even one other veteran get the benefits they deserve than I should think GIV has accomplished something and would hope it continues.
painThere is a serious injustice in the world today. When I joined the military in 1988 I was only 20. I never gave any thought to the government’s control over me or the fact that when I was older and not able to fight that maybe I would be a discarded veteran at the mercy of a bureaucracy like the Veteran’s Affairs. As I have said before, when I say this I know there are many great workers, some of which are veterans themselves who are trying to do their best. I am referring to the people who run the VA at the top echelon. The decision makers and policy makers. The civilian-contracted corporations who provide cut-rate medicines, medical equipment, medical services, and preside over compensation exams and more. In short, the part that is broken and needs fixing. This is where my anger at the system lies. I also don’t claim to be an expert on the subject. I am still learning every day. I am constantly asking questions and learning from other veterans. Especially our Vietnam, Korean War and WWII vets who have been fighting for a better VA for years. Without them we might not even have a VA.
Now, as I said before, I am letting you into a glimpse of my life that I don’t usually tell many people about for several reasons. One of them is that most people have their own problems and don’t want to hear mine. Since you’re still here reading this I will assume you’re okay with it. Another one is that I believe I have been conditioned by doctors and society to not tell anyone everything because everyone is in such a hurry these days and maybe because they don’t know what to deal with me. In the five years I have been with VA health care I have not had a doctor who could take the time to listen to my medical problems and try and work with me the way a civilian doc would. None of them wants to hear everything and they certainly have not been interested in doing any of the things that are listed as advice on the VA website such as “work with your healthcare team.” Or ask your healthcare team this or that question. I have tried this and it rarely gets more than a strange look and a question about me wanting to see mental health because they think I’m crazy. I have been so confused about what the VA is thinking when they post these things that are on the website, give out pamphlets, and blog about all these lofty ideals and concepts that in reality just don’t seem to happen. (at least not for me anyway).
pain3I have talked with my doctor and nurses about how much pain I was in and they just keep filling me up with pain medications. I have no problem with that and I have come to the realization that I may have to take them the rest of my life due to the overwhelming amount of pain I am in. But if there were a way that I could survive without them I am all for it. I am not some scumbag sitting around plotting ways to get high. I sometimes feel that is the way I am being viewed if the subject comes up and by what is being said to me. However, the doctor is the one who is responsible ultimately if they do not provide treatment alternatives. For example; I went to a rheumatologist about a month ago. I was told by my main provider in April that I had Rheumatoid Arthritis. Then at the rheumatologist she says no. I asked why my doctor said that and she did not know. I was confused. Apparently they have not or will not communicate about it. As always I am in awe of this lack of communication and the lack of concern that one hand doesn’t know what the other is doing on all levels of the VA. So next the rheumatologist says that she wants to know what is wrong with me. So I go over all the many problems I am dealing with on a regular daily basis and she tells me to stop halfway through – as usual not even my doctors want to pain4actually hear it all. (I guess I complain too much. But they asked, right? So I told them.) Next she says some stuff about how my x-rays showed I have extensive arthritis throughout my body. She said the only way to deal with it is pain medications. She offered to give me a shot of cortisone. (which rarely worked in the past). She asked me where I wanted it and I said I would like to try my knees because they hurt bad a lot of the time especially at night. She did it and no help. She told me to call in a few months and set up another appointment to have another cortisone shot. I was so confused about this lack of help that I just sat there looking at her until she told me to leave. This was the appointment I had been looking forward to for months and no help. The other thing that bothered me about the visit was I asked about arthritis medicines and she said, “Like what?” I just throw my hands up. I know there are arthritis medicines, but I just asked and she didn’t know or didn’t want to talk about them or god knows what this doctor is saying or doing and that’s pretty much where I stand with every single doctor I have ever met at the VA. I have never felt like they have my best interest in mind or they could care less whether or I live or die as long as they keep their job. This just makes me want to give up, but I won’t. I will keep on fighting until hopefully some day I may be able to work my way back to going to what I call a “regular” doctor outside the VA.
pain5Perhaps it’s not the VA. I don’t know. Maybe the entire medical establishment is in a who gives a shit state-of-mind due to recent changes. Whatever the problem is I guess it’s a terrible time to have serious medical problems. Before I had all these issues I felt bad for people like me, but I could never truly understand how badly it affects your every day life until it happened to me. It affects every asset you have – your weight, your body, your mind, your spirit, your values – it takes all you got to get through it and the movie can only end badly.
My life is depressing and I try to keep upbeat, because I have a family. I am a man who has always been tough and tried to do my best to be a good dad and husband. My wife had a rough life. She grew up in a small town in Florida with not much money and she was abused by her first husband and so were her two boys. When I first met her I was still in the service. I was stationed in the small town she grew up in. She had three kids when I met her and she dreamed of meeting somebody some day. I am glad I could make that dream come true. I had been drinking heavily when I met her and I went to rehab and stopped. I had no problem raising her kids as my own and that’s what we did. The kids are all grown up now, my daughter, the youngest – just turned 18 on August, 20th.
pain7Now, I am 45 and every day seems worse than the last. I am going to start with the last weekend. It’s Sunday afternoon to you, but in reality to me it’s more like Sunday morning. I don’t always have the ability to sleep so I never know from day to day what my schedule will be. Let’s start with Saturday. I started having severe pain in the afternoon. I hadn’t slept more than four hours the night before and maybe a couple of ten minute cat naps here and there. The severe pain is about an 8 on the scale to start with and gradually works it way up to a 10 on that pain scale the docs love so much. If I could go higher it would go up to more like a 20. (keep in mind this is with two different types of painkillers.) Sometimes it comes down to about a 4 or 5 at the lowest, but that doesn’t usually last long.
pain8The pain starts usually in my thighs. It feels as though a piano wire is being wrapped around the meat of my thighs. I am used to it happening every day so I try to ignore it. I do whatever I can to keep my mind off of it. I read, I listen to music, watch a movie, try to talk to my wife or daughter, I surf the internet or I write. I mostly write. I am trying to finish a book I am writing and I work on this blog. Anything to not have to think about the pain.
pain9The pain in my lower back is always there. It hardly ever completely goes away. I do stretching exercises twice a day to try and keep it loose. This has helped my posture and maybe in some other areas, but the pain has not gone away. I also have stretching exercises I just started for my shoulders. (all my joints are in pain every day due to fibromyalgia, arthritis and polymyalgia rheumatica). The pain in my back gets worse and worse as I move around. I don’t work (disabled) so this is just daily movement to try and make meals, grooming, dressing, etc… and I try my best to try and do slow purposeful movements as I was advised in physical therapy – keeping in mind how I used my body. I was advised to do certain things that may help you if you have this problem – I have been just recently buttoning up shirts ahead of time before putting them on or putting on a belt ahead of time in pants etc.. that way I don’t have to reach, although I mostly where loose fitting, easy to put on clothes.
pain10I am usually able to handle the pain during the afternoon because I have been living with it for years. I used to work with it and I tried my best to ignore it when I was younger. However, when I got older it just seemed to beat me down. I have a high tolerance for pain and I don’t usually talk about it so this is hard to write.
On top of the pain I fight the mental problems which I think is the hardest thing. I am fighting depression, anxiety, and a mood disorder. I wonder why? I don’t like crowds, I don’t always do well talking with others and I get pissed sometimes – so sue me. I don’t know who wouldn’t be pissed if they had to live in pain, couldn’t work, and was broke all the time. I live off a VA pension and I have been waiting five years to try and get the service-connection I know I deserve that would give me twice the amount of money I am getting now. If you don’t like what I am saying or you don’t think I have a right to complain I would be happy to trade places with any of you who are not as sick as me and have a job any day of the week with no questions asked. Ever see the movie with Eddie Murphy – Trading Places?
Moving on, about dinnertime, I am getting the full pain gamut that I havpain11e daily. My guess is because the temperature is dropping. I think arthritis is a lot of my problem because temp. changes are a big factor in my pain level. I start getting severe, sharp pain in my knees, I feel like there’s pins and needles in the top of my feet, and my neck and shoulders hurt. During this time I am also dealing with some other problems. I have chronic diarrhea or IBS. I have a constant ringing in my ears or tinnitus – this is just in the last few months. (no cure for that). As the night goes on the hissing in my ears also seems to gradually get worse. I have no idea why. I also have stomach cramps up under my left rib cage and I don’t know why that is either. I have told doctors and they don’t know either. Of course they also haven’t offered to try and find out why by testing.
pain12So I am dealing with all this pain and I am always tired, but I can’t sleep as much as I may try. Saturday night I tried to relax because I hadn’t gotten much sleep for a while. Four hours is not much, but that’s better than nothing which also happens. I try and relax and watch a movie or listen to music. I played a video game on my PS2. I tried laying down about 10:00 PM. I fixed up my pillows so that I am sitting up because I have sleep apnea and I am afraid that since I can’t handle sleeping with the mask on that I might die in my sleep if I lay flat. The reality is that I don’t think it matters. I wake up gasping for air, my heart beating really fast and I am always constantly thirsty and tired. I still can’t sleep after 20 minutes.
So I try and watch something on television. There’s not much on basic cable after 10pm. I can’t afford to buy more channels or rent movies or any of the extras that most people enjoy. My friends ask me if I used the DV-R to record a show and I say I have never been able to afford one. This is life without a job. I don’t have HBO, I don’t have any extras – I just am lucky to have a roof over my head and clothes on my back. Three years ago I was homeless. I am thankful for what I have, but on nights like last night it would’ve been nice to have something to keep my mind occupied. But I try and get into some old black and white movie.
pain13By 2 AM I am going crazy. I try listening to an audio book, but I can’t concentrate. My wife and I don’t sleep in the same room. She is sick too. She gets SSI and she has daily stomach problems to deal with thanks to a botched ulcer surgery. I am up most of the time anyways, but she doesn’t like our mattress. We haven’t been healthy enough to make love in years either so it’s not that big of a deal. She is asleep sort of. I hear her get up often. We both don’t sleep anywhere as much as we used to. I lay in my bed and notice that the ongoing sea of crickets chirping in my ears has gotten worse. I am really tired now. I can’t stand it. The pain makes it so that I can’t possibly get comfortable. I have taken the daily dosage of pain medication so I have no outlet there. I decide that I have no choice but to take a sleeping pill. They’re prescription, but when I take them I tend to sleep so heavily that I am seriously afraid of dying in my sleep due to the sleep apnea which causes heart attacks and strokes. It’s a catch-22, but I try and avoid them when I can. I would hate for my family to find me dead.
pain14I woke up this afternoon at noon. I slept from 5:30 AM to noon. (six and a half hours). This is about as much as I can sleep. This is a typical cycle for me. I average about 4-5 hours of sleep all week and then by the weekend my body is craving sleep so much that I have to take a sleeping pill and get an extra hour. I don’t know why – I also have chronic fatigue syndrome. This makes me tired all the time.
So now it’s about 7 PM, Sunday evening and the whole vicious circle continues. Another day and more pain, another restless night, and more wondering how it’s all going to end if ever.
I want to mention that I also have some other problems I deal with daily. They may be considered minor things, but in the scheme of things when you are dealing with a lot of medical issues these things certainly can hinder everything else. I have to take my blood pressure every day for hypertension. Not a big thing for me. I take a couple of meds for this too. My BP is usually higher when in pain. I also have elevated white blood cell count. I have no spleen so I am told this is normal, but I have heard that many veterans who were in the gulf have this. It concerns me, but I doubt it concerns anyone else. When I wake up in the morning my body is asleep. My legs, my hands, my arms all have to be woke up – they’re cold. My hands are curled up in a ball. I have carpal tunnel syndrome too. (not a big deal considering the other things.) I have trouble walking as well and walk with a walker. I can’t walk very far before very severe pain sets in and I have to rest. I have trouble sitting or laying down for a long time and have to stand or move around a little bit so I am up and down all the time.
pain15I also have a serious problem with bright lights and sunlight. I don’t like it. It gives me headaches. I also deal with severe headaches that can come on at any time and just are the kind of headaches that knock you on your ass.
In addition, I can’t stand the smell of chemicals such as common household cleaners, perfume or cologne, or bleach or anything like that. I start to cough and sneeze and get a headache from that. I have asthma and COPD and take several inhalers daily so I’m guessing it’s this or some sort of effect from some sort of exposure. I may be leaving things out even because I never know what’s next for me. I don’t like it and I don’t want it, but the fact is that I seem to be having a lot of compounding problems for the last five years and I never know what’s coming next. Throw the flu or a cold in the mix and I am wiped out for days.
pain16Well, this is a day in the life for me. I have been brutally honest and I know that if you are still reading this and you don’t know have these type of problems it may be hard to understand. You may be thinking that I am complaining or that I’m not thinking about the people that are worse than me. That’s not true at all. Those thoughts keep me going all the time. I know that it could always be worse and it most likely will. I am documenting my experiences as a veteran of the Gulf War. I have Gulf War Illness or Gulf War Syndrome –- whatever you want to call it and all I know is that some day it will be the end of me and none of that will matter. Perhaps it will matter to future generations and some day we will stop subjecting our kids to these horrific mistakes that could have been avoided. Recently there has been a lot of testing done and it looks like we are closer to getting better treatment possibly — it only took 23 years to prove it’s not psychological. 75,000 people could have told you that a long time ago.

The Burn Pit Registry


burnpitRecently the president approved a new burn pit registry for veterans who were exposed to burn pit fumes in Iraq and Afghanistan. This is in order to keep track of the veterans who were around the pits and to notify them of new treatments and monitor their existing health problems and health history. This is a long over-due step in the right direction. The provision was strongly supported by the Disabled American Veterans and other veteran’s organizations and is part of the Dignified Burial and Other Veterans’ Benefits Improvement Act. Many veterans lived and worked in and amongst burn areas and it was painfully obvious that health risks were there, but as always following orders is what the military members do. For the troops deployed in support of contingency operations in a location where a burn pit was used are encouraged to register as well.
The National Adjutant of the DAV said, “This is a long overdue step in the right direction.” This same legislation also ensures the VA provide a casket or urn for veterans with no known next of kin and sets aside funds for a military cemetery in the Philippines.
burnpit2In addition the president also signed legislation that will give veterans access to better resources to achieve a quality education. It is called the Improving Transparency of Education Opportunites for Veterans Act.
For more information about how to register for the burn pit registry:

http://www.publichealth.va.gov/exposures/burnpits/action-plan.asp

As of this post I don’t believe the registry is ready yet, but the VA is working on it and if you have questions you can contact your medical facilities’ Environmental Hazards Coordinator.

The Potential Causes of Gulf War Illness


new1It seems funny that after over twenty years we still have no cause. There seems to be no interest by the media other than back page stories in newspapers and no television that I have seen or heard of. Most of what I could find for the causes of Gulf War Illness is the same today as it was twenty years ago. It’s becoming evident to me that the only people who really care about Gulf War Illness are those of us who have it. I guess we are lucky that it’s not the same for Cancer, Leukemia, Aids or other diseases that affect far more people in our society. Then again, if we really cared we would find a cure and stop letting big pharmaceutical companies run the country. Right now there are lobbyists lurking in the halls of congress waiting to trade favors in exchange for getting another big drug approved so that when you get sick, and god help you if you do, they can give you a bunch of pills instead of trying to find a cure or a cause for what is wrong with you.

The following factors may have interacted to bring about specific symptoms in veterans. Obviously, the combinations of factors differ with individuals, hence it is likely that there is not one single explanation of the whole spectrum of symptoms. However, the following main categories are candidates for causal relationships with illnesses reported by veterans:

Administration of three vaccines intended as protection against nerve and biological warfare agents. These were:
gw3Pyridostigmine, normally prescribed for myasthenia gravis and known to have serious side effects, especially when the person taking it is exposed to heat. It is also known that exposure to pesticides and insecticides (Baygon, Diazinon and Sevin) should be avoided when taking pyridostigmine because they can accentuate its toxicity. Some women who took this drug during pregnancy and have breast-fed infants have seen side effects in their child.
Botulinum Pentavalent, an unproven vaccine intended to counteract botulism. It is unlicensed in the United States.
Anthrax, to protect against the disease anthrax. This was apparently selectively administered to troops during the war, and women receiving it were warned not to have children for three or four years.
du1Depleted uranium was used for the first time in this war. It was incorporated into tank armor, missile and aircraft counterweights and navigational devices, and in tank, anti-aircraft and anti-personnel artillery. The scientific information on this deadly chemical has been reported in “Radium Osteitis With Osteogenic Sarcoma: The Chronology and Natural History of Fatal Cases” by Dr. William D. Sharpe, Bulletin of the New York Academy of Medicine, Vol. 47, No. 9 (September 1971). There was no excuse for this human experimentation because the effects of this exposure were known.
Smoke and chemical pollutants released by the continuous oil- well fires. Levels of soot, carbon monoxide and ozone have been studied by an Environmental Protection Agency Task Force. The National Toxics Campaign, Boston, Massachusetts, found five different toxic hydrocarbon products in the smoke (1,4-dichlorobenzine, 1,2-dichlorobenzene, diethyl phthalate, dimethyl phthalate and naphthalene), any one of which could induce serious health effects.
Old World leishmaniasis, a parasitic disease transmitted by the bite of many species of sand fly indigenous to the region. Non-indigenous people who enter an infected area are known to be more seriously affected by this parasite than the inhabitants. If left undiagnosed, and therefore untreated, it can be fatal. Diagnosis requires bone and spleen biopsy, and the disease can have a three-year incubation period without causing symptoms. It can be transmitted by blood transfusion, and transmitted by a woman to her unborn child. Leishmaniasis was reported as widespread in Iraq and Saudi Arabia. This disease is thought to be responsible for the Pentagon ban, November 1991, against blood donations from Gulf War veterans. This ban was lifted, for unknown reasons, on January 11, 1993.
du5Pesticides and insecticides were used extensively throughout the war to protect against pestilence. It is known that large quantities of DDT, malathion, fenitrorthion, propuxur, deltamethrin and permethrin were used. They are all toxic nerve agents, and many are suspected carcinogens and mutagens.
Destruction by allies of Iraqi chemical, nerve and biological warfare weapons resulting in widespread distribution of these toxins in the environment. This problem has now been, at least in part, documented by the U.S. Department of Defense. They are focusing on this potential cause as if it were the only candidate cause.
Depleted-Uranium-Mortar (1)The electromagnetic environment which permeated the battlefield during the war. Veterans were exposed to a broad spectrum of electromagnetic radiation created by electricity generated to support the high-tech instruments, thousands of radios and radar devices in use. This intense electromagnetic field causes both thermal and non-thermal effects, and potentially interacts with the other hazardous exposures and stresses of the battlefield. Electromagnetic radiation can alter the production of hormones (neurotransmitters), interact with cell membranes, increase calcium ion flow, stimulate protein kinase in lymphocytes, suppress the immune system, affect melatonin production required to control the “body clock,” and cause changes in the blood-brain barrier.

Proof of Gulf War Illness with Not Much Media Attention


English: A British Challenger 1 main battle ta...

You would think that the recent findings by a Georgetown University Medical Center report proving Gulf War Illness is real would make a great headline. Perhaps it’s been too long for younger demographic of news media outlets to run with. Is it just old news and no longer worth reporting? I wanted to find out, but my calls and e-mails did not get much response. Most journalists I contacted at the New York Times, the Chicago Tribune, NBC News, CNN and FOX News did not even respond. If they did it was mostly just a form type response and it was clear they did not read my question or did not wish to respond.

If you have heard the news the report shows that scans of brain matter in two regions of the brain associated with pain regulation when tested on Gulf War veterans show a loss. This affects cognitive deficits, autonomic dysfunction, severe fatigue and chronic widespread pain that is implicates the central nervous system. You would think that maybe the VA might get the word out to those of us who are Gulf War veterans, but that hasn’t happened either. Perhaps my doctor would be concerned for my health and would wish to run more tests on me, but that definately did not happen as she does not want to treat me for it. When I asked about treatment for Gulf War illness she told me to talk to my veteran’s service officer. This is the fourth doctor to tell me this.

One of my major concerns is that the test also showed that any type of physical or mental effort considerably worsens symptoms. This means that the more I try to do light stretching exercises and walking, swimming or other daily activities along with things such as typing this blog make me worse. I guess that’s not really a surprise to me, but it is very scary and it makes me wonder how much worse it will get over the years. I want all of you reading this who have Gulf War Illness or have a friend or loved one with it to discuss this and find out how it is that we are not getting all the benefits that we deserve for this debilitating condition. We have to do something now before it is too late. We are at a much higher risk for Cancer and ALS and as we age there is no telling how much we can get. I urge you to take action now. Contact your congressman and insist they do more to push for your rights and benefits.

One of the scientists who was involved in the study stated, “Our findings help explain and validate what veterans have long said about their illness.”

English: An American serviceman examines an Ir...

Another doctor, Dr. White said “We don’t know the cause of these differences in the veterans’ brain volumes, but the hypothesis is that they are related to exposure to hazardous substances during the first Gulf War. Many troops were exposed to hazardous substances such as pesticides, and other studies have shown that exposures to these substances affect the central nervous system.”

As test results and studies from major accredited universities, government agencies and others continue to be revealed nothing more seemed to be done. In fact, I receive updates from many governmental agencies daily via e-mail and I haven’t seen a thing about this study. I found this on my own and may not have found it had it not been for a routing google search for this blog. It is a very advanced study and shows the most conclusive and revealing results so far in the history of this illness, yet we are still at square one. I fear that if we do not do something to stop this the trend will continue for generations to come.

Discuss & Raise Awareness for Gulf War Illness

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